I have not been updating a lot, sorry about that! I have had lots of people asking me about Nevin and how he is doing. Well... He is doing great!
He has been on his thyroid meds for 3 months now and his energy level is thru the roof. He was always been my outside kid but now we have to bribe him to come inside. He would play in the dirt, sand and slides and swings all day if he could. He still needs down time but not nearly as much as he used to. I rarely find him just sitting on the couch or zoned out in his room. He is always playing, wrestling with Skyler or getting into trouble! He is keeping me moving right along with Sky Man.
When he turned three he graduated from First Steps. It was a bittersweet time for us and for his therapist although they still get to see him because of Gavyn, except for his favorite therapist who was his speech. We miss Jill and the fun she brought and the love she showed Nevin. We were going to go with the special school district in public school but that turned into a big mess. For about a month Nevin did not get therapy and we were left wondering what we were going to do next. I spent a lot of time on the Internet and phone trying to find other options for him. We have now gotten him into PS Kids and it is going really well. I am very happy with the facility and therapists. Everyone is helpfulf, nice, knowledgable and caring about these kiddos. It has been a transition from having everyone come to us to now going to them but we are getting used to it. Skyler is such a trooper on therapy days and it is nice to have time with him and do errands and whatnot while we wait for Nevin to be done. Gavyn is so easy going he just goes along for the ride.
Nevin will be following up with his endocrinology and neologist every couple months. He will be getting blood work done every couple months as well to check his thyroid levels. And we are also taking him to see an ENT at the end of the month. His speech is still very delayed and although we are seeing progress all of his sounds are very nasally. Although I don't want one more thing to go wrong for Nevin part of me wants them to find an answer for him. If there is something prohibiting him from talking I want it corrected so he can move on in his journey.
I know there are a lot of you praying for my little brood. Thank you so much! We can see big changes in all the boys. Everyone is making big strides.
Saturday, March 19, 2011
Thursday, March 10, 2011
The Sippy Cup Saga
Even if you know me well you probably do not know about all of our Sippy cup adventures. Thankfully Skyler and Nevin both transitioned to the cup easily. But there are still so many choices! Soft tops, hard tops, open tops, straw cups... Seems that the list is endless and confusing. You also have to add in all the worries of safe plastics, safe cleaning, my goodness does a mother's job ever end? Now we have Mr.Gavyn and the real adventure begins.
At about 6 months we started thinking about the cup. I went out and got a soft top Sippy and a soft straw cup not thinking anything of it. I was in for a surprise when weeks passed and Gavyn would not let you put it in his mouth, would not pick it up, he wanted nothing to do with it. Thankfully we have an awesome OT who was there to help. Unfortunately we are 6 months later and not much progress made. He will pick the cups up and sort of put it in his mouth but there is no attempt to drink. I saw the Honey Bear cup and thought, why not try it? I went to order one and to my great surprise the shipping was more than the cup and I am not about to spend 10 bucks on a cup that might not even help!! I started to look at how it was made, thought about why they work well and thought, "Hey, I could make that!"
I did some plastic research and went looking around my house. Found a peri bottle and some straws. Grabbed the scissors, knife and nail file. Here is what I did:
Cleaned the bottle well with hot water and soap.
Got Ryan to pull the outer cap off of the peri bottle since I was not strong enough :)
Cut the tip down so I could fit the straw in it
Filed off all the sharp edges
Inserted the straw
Presto!
We just tried it out and he actually liked it! Let me put it in his mouth, squeez and he got a mouth full of milk. Hopefully after a few days he will be doing it all on his own.
At about 6 months we started thinking about the cup. I went out and got a soft top Sippy and a soft straw cup not thinking anything of it. I was in for a surprise when weeks passed and Gavyn would not let you put it in his mouth, would not pick it up, he wanted nothing to do with it. Thankfully we have an awesome OT who was there to help. Unfortunately we are 6 months later and not much progress made. He will pick the cups up and sort of put it in his mouth but there is no attempt to drink. I saw the Honey Bear cup and thought, why not try it? I went to order one and to my great surprise the shipping was more than the cup and I am not about to spend 10 bucks on a cup that might not even help!! I started to look at how it was made, thought about why they work well and thought, "Hey, I could make that!"
I did some plastic research and went looking around my house. Found a peri bottle and some straws. Grabbed the scissors, knife and nail file. Here is what I did:
Cleaned the bottle well with hot water and soap.
Got Ryan to pull the outer cap off of the peri bottle since I was not strong enough :)
Cut the tip down so I could fit the straw in it
Filed off all the sharp edges
Inserted the straw
Presto!
We just tried it out and he actually liked it! Let me put it in his mouth, squeez and he got a mouth full of milk. Hopefully after a few days he will be doing it all on his own.
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